The Alle Shea Project
Call us at: 585-298-1973
Alle Shea's Story
April 14th, 2009 my wife and I welcomed our first daughter Alle Shea Collazo into the world, on this day we found out that Alle had Osteogenesis Imperfecta (OI) type II. OI is a genetic disorder characterized by bones that break easily, often from little or no apparent cause. Rolling over in bed or sneezing can cause a fracture. Type II is the most severe case of OI, At birth Alle had broken arms, legs, wrist and Alle's skull had many fractures. Alle lived a miraculous 5 weeks battling the brittle bone disease but, sadly on May 21, 2009, Alle passed away due to respiratory complications caused by OI. To honor Alle's brave fight we created The Alle Shea Project and with help from the OI Foundation we host various fundraisers and awareness events to raise funds for research and to help support families with OI, we work hard to raise awareness of OI in Alle's name and to keep her fight alive. Please help us honor our brave Alle's battle by supporting our cause.
Alle Shea Project ® 165 Vinedale Ave, Irondequoit, NY 14622
Upcoming Events
Uno Dough-Raiser
April 14, 2024
12 pm - 9 pm
UNO Pizzeria & Grill
931 Holt Rd, Webster, NY 14580
Food Truck Rodeo
TBD